rare birthmarks

Our biggest question at that point was, " , so its a giant congenital nevus so then what?" In Sully's case, he will likely have many, many surgeries over a period of time (probably before school age ) to remove as much as possible of the nevus. Sully had one in the hospital of his spinal cord which came back normal, however, we still need to get one of his brain and will then be seeing a pediatric neurologist in the next 2 weeks to review the results and talk about monitoring for changes over Sully's lifetime or treatment if there is anything we need to be worrying about. rare birthmarks rare birthmarks